ALS Overview: What it Is, What it Is NOT and Common Symptoms

As many of you have recently learned, my dear husband, Ayeez, has been diagnosed with ALS. Since his diagnosis, in addition to caring for him, I have made it my personal and professional mission to help research this devastating disease and ultimately, find a cure to see that no one human being, or their families, experience this illness ever again. I have created a global research team who work day and night to keep Ayeez as healthy as possible while proactively finding the best treatment options possible to help reverse his disease. In doing so, we are discovering more and more ways to treat ALS and are looking forward to spreading the word about these treatment options to anyone who is affected..

One thing I have learned is that while most people know of ALS, not many know exactly what it is.

Amyotrophic Lateral Sclerosis, commonly referred to as ALS or ‘Lou Gehrig’s’ Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. ALS belongs to a class of disorders known as motor neuron diseases, and is often times confused with multiple sclerosis. In our bodies, we have motor neurons that reach from the brain to the spinal cord and from the spinal cord to the muscles. When a person has ALS, these motor neurons deteriorate, causing muscle atrophy and loss of the deteriorated muscles. The motor neurons that are affected when you have ALS are the motor neurons that provide voluntary movements and muscle control.

As of today there is no single known cause of ALS. In many patients, ALS is a combination of many different causes. It is also said that there is no cure, however I wholeheartedly believe there is nothing on this Earth that is incurable. My research team and I are devoted and working day and night to find a cure for not only my husband, Ayeez, but for anyone who is suffering from ALS.

While there are a ton of causes of ALS, below are some of the many common contributing factors to ALS:

  • Lyme Disease
  • Glutamate (neurotransmitter) excitotoxicity
  • Anterior Horn Cells
  • Toxins: heavy metals such as lead, mercury, arsenic
  • Oxidative stress
  • Physical and emotional stress
  • Autoimmune disorders
  • Hormonal imbalance
  • Mold toxicity
  • Genetics
  • Epigenetics
  • Retrovirus
  • Gut Dysbiosis
  • Cervical stenosis
  • Copper Deficiency
  • Damage to the cervicospinal tract

There is also a very wide range of ALS signs and symptoms. Below are some of the most common symptoms of this disease and how they affect those who are diagnosed:

  • Spasticity, or tightening of the muscles
  • Clonus
  • Fasciculations or muscle twitching
  • Impaired speech
  • Difficulty chewing
  • Persistent fatigue
  • Muscle cramps
  • Difficulty swallowing
  • Weakness
  • Hyperreflexia
  • Difficulty breathing

When it comes to testing for possible causes of ALS, it can be very overwhelming as to where to begin. Below are the three most probable causes of ALS, and also testing options for each:

  • Heavy Metal Toxicity – Doctor’s Data Test
  • Lyme Disease – Igenex
  • Mold – Real Time Labs

Finally, one aspect I have learned is that there is a large misconception about ALS.

ALS does NOT impair a person’s mind, personality, intelligence or memory. ALS does NOT affects a person’s ability to see, smell, taste, hear or feel. ALS is NOT untreatable.

As each and every day passes by, Ayeez still stands to be as resilient now as he was before his diagnosis, as do many ALS patients. He still pushes himself hard to maintain all his activities, smiles, and is the same determined and courageous Ayeez he has always been. My family and I would greatly appreciate any positive thought or prayer you can spare. We are believers in miracles and will not stop until we find a cure for this illness.

Please feel free to join our Facebook community where we encourage you to share your thoughts and prayers, as well as motivational and kind words for Ayeez.

We are also creating a website and will be featuring stories about other wonderful people and families affected by ALS. If you’d like to submit an inspirational story of an ALS Hero, please email it to [email protected]

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Posted in: Neurodegenerative Diseases


Responses:

  1. Hi Ayeez and Dr. Shel,
    Ayeez I know it’s been ages, but friendships withstand time! Please know that I am praying for you and your family. Please let me know if there is anything I can do. Love, Dolly

    Comment by Munira Allibhoy (aka Dolly) on May 3, 2018 at 11:45 am

  2. Prayers

    Comment by Starla Turnbo on May 5, 2018 at 7:06 am

  3. Dr.Shel and Family… so thankful to hear that u r determined to find a cure for ALS and have shared Ayeez’s story. I luv the positive, vocal stand you and Ayeez have taken in our community to share your faith in our God , to bring awareness and developing a team to find a cure. May God’s mercy, wisdom, and strength lead and guide you as you and Ayeez battles this horrible disease. May God’s presence and grace keep you, Ayers and Family as you proceed in this journey of healing and change to make our community and world safe from this mysterious disease. I believe Romans 8:28! Love and prayers Carol

    Comment by Carol Briggs on May 12, 2018 at 7:50 am

  4. Dear Dr Lalji and Dr Shel

    Just want to let you both know , nothing is impossible that’s what I believe in you are super mom and wife if anybody can do it that’s you. Always in my prayers . Ram

    Comment by Dr Ram Katikaneni on July 19, 2018 at 8:56 pm

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